Come run, bike, or swim in this virtual event hosted by Illiana Multisport benefiting Rhett Detamore. Rhett is beautiful 1 year old boy in our local Terre Haute Community community suffering from Periventricular Leukomala which is a cause of Cerebral Palsy. 100% of the funds from this event will be given to Rhett's parents to help cover the costs associated with this disease.
In this virtual event you can choose to participate and compete in one of the following 4 categories.
- Running
- Biking
- Swimming
- Triathlon
You will record your mileage from Monday April 25th until Sunday May 1st. We will then ask you to please email your total mileage to Illiana Multisport (Illianamultisport@gmail.com) by Wednesday May 4th. We will be using the honor system here! We will then have custom bib#s printed which will feature your name and total weekly mileage and we will then mail them to you as an awesome take away for participating in this fundraising event for Rhett. You can expect to receive these bib#s in 3-4 weeks.
We will also be printing up a custom bib# for Rhett featuring his name and the total mileage everyone completed for him on his own bib#. We will then deliver the personalized bib# to him and his family along with 100% of the proceeds from this event.
Please include the following in the mileage submission email:
- Name you registered under
- Total weekly mileage
- Address of where you would like your custom bib# mailed (if it is different from the address you listed when you registered)
We will then announce the winners for each event category via email and facebook after the event!
Winners in the running, cycling, and swimming category will be based off of the highest total mileage in that individual sport. The triathlon category will be slightly different since we have 3 sports to consider we will be doing a point system and the individual with the greatest amount of total points will win.
For the triathlon
1 mile of swimming = 3 points
1 mile of cycling = 1/3 points
1 mile of running = 1 point
Rhett's Story
Rhett's parents Brad and Brittany Detamore moved to Terre Haute from Gunnison, Colorado in December of 2013 in order to be closer to Brad’s father, Jerry Detamore. Jerry was diagnosed with ALS in June of 2012 and passed away in September of 2015. When they moved to Terre Haute Brittany was 20 weeks pregnant with their first child, which would be Jerry’s first and only grandchild. They were blessed with a beautiful baby boy, Rhett Adam Detamore. Although they were eager to meet our bundle of joy, Rhett was less enthusiastic, arriving 11 days after his due date on June 11, 2014, weighing 8lbs 7oz. Rhett was a healthy and strong baby from the moment he was born and he progressed very well throughout his early development. At about 14 months Rhett was not walking and Brad and Brittany began to suspect Rhett may be behind in his development. Rhett began physical therapy with Nicole Woodard at Indiana State University (ISU) at 17 months, upon who’s assessment suggested Rhett may need further testing. Rhett was diagnosed with a neurological condition known as Periventricular Leukomalacia (PVL) at 18 months. Nicole has been truly amazing with Rhett, who after two months of physical therapy is showing tremendous improvement. Brad and Brittany are extremely hopeful that Rhett will continue his linear progression and are so blessed to have found such wonderful support in our community.
What is Periventricular Leukomalacia?
This is damage to the white matter surrounding the brain ventricles usually occurs at birth. It causes the white matter to die which affects the development of speech, feeding, gross motor skills such as crawling/ walking, fine motor skills such as writing, picking up objects. The ventricles will appear significantly larger on imaging which then leads to diagnosis.
Most children that are diagnosed with PVL will also be diagnosed with cerebral palsy(CP). PVL is the reason and CP is the actual diagnosis that describes how the child is being affected. Children with neurological disorders have to have extensive care throughout their developing years including pediatrician, orthopedists for possible surgeries and bracing, neurologist, geneticists, physical therapist, occupational therapist, speech therapist usually outpatient and early intervention. Patients typically get services 5 days per week. There are so many services that insurance will not cover or only covers a certain amount and therefore the medical bills can become overwhelming very quickly coupled with dealing with a new diagnosis.
Rhett is an amazing little boy and the wonderful thing about early access to services is the plasticity of the brain. It will develop new pathways and new forms of communication so that Rhett can continue to progress throughout his therapies. Brittney and Brad are resilient parents that have done anything and everything to make sure that Rhett is getting the best possible care. They continually work with him at home, purchase more interactive toys, drive extra time to have a better daycare facility and rehabilitation. It is difficult to imagine what their family is experiencing at this time. Mainly because if watched Brad flip Rhett upside down to play tick tock or if you heard the enthusiasm in Brittney’s voice as she talks about their weekend adventure to the Children Museum, you would never imagine they are struggling with a new diagnosis. The Detamores are a wonderful family that are just as fluid and adaptable as Rhett’s brain but the financial support that we are able to provide will continue to allow them to enjoy their time as a family, take trips that stimulate Rhett’s learning, and have a little less stress on their plate.
